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Top 10 Campaign in Health & Wellbeing · November 2026
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Top 10 Campaign
Health & Wellbeing · November 2026

A Hidden Population

PR Campaign
Tuesday 3rd November, 2026

Care England and Dementia Forward published A Hidden Population, a report revealing that 95% of councils do not separately record young-onset dementia. Drawing on Freedom of Information requests and case studies, it estimates that up to 100,000 working-age people in England may have the condition and calls for better data and age-appropriate support.

Why it worked: It used FOI data to expose a quantified system failure (95% of councils can’t track YOD), creating urgency and accountability targets.

The lesson: Consider filing FOIs to reveal a measurable blind spot in public systems, then publish a simple league table and fix list.

Care England Dementia Forward
1 Source:

Coverage over time

How this story spread across the media

Publication Headline Date
thecareruk.com 95% of Councils Can’t Track The Number Of Local People With Young-Onset Dementia, New Report Finds Tuesday 3rd November, 2026
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